Thursday, March 22, 2018

World Down Syndrome Day 

I’ve been thinking for the last few days what I wanted to post for World Down Syndrome Day. Should I write about inclusion, acceptance, opportunities, more alike than different. And what I kept coming back to was the realization that if I didn’t happen to have this amazing kid I would not be a part of all of this. All I would know about the Down syndrome community was the after school special I saw as a kid. I wouldn’t know how an extra chromosome makes you extra intuitive to human emotions & makes you have an extra special memory where you will never forget someone’s name much less their dog’s name. That extra chromosome also brings some stubbornness but that could come from your mom & dad too. And that extra chromosome makes you have the biggest, most open heart to all those around you. Sometimes, no scratch that, all the time I think we ALL could use that extra chromosome. That uninhibited, go up & meet & greet whoever you see, type of personality. He’s an old soul who wants to genuinely know about your day, what you are having for dinner, & the most important life question, what color is your front door. You would not believe how telling that answer is.


With yesterday being World Down Syndrome Day I’m once again reminded by all those that love my boy like he is their own, that extra chromosome is worth being here. There are places in this world trying to get rid of it & that breaks my heart because thinking of a world without Carson is absolutely a world I do not want to live in.

So back to yesterday, Carson’s school had a celebration for World Down Syndrome Day & to say it was spectacular would be an understatement. The sea of Carson’s Crew t-shirts, blue and yellow, & crazy socks made my heart smile. Carson’s class singing “You’ve Got a Friend in Me”, and teaching all these young minds a little about Down syndrome & a lot about how they are already showing acceptance & inclusion brought tears to my eyes. Having friends near & far reach out to show their support not only for Carson but all those rocking that extra 21st chromosome was beyond heartwarming. Finally, knowing all those that have come in contact with Carson just might have a different view of Down syndrome than they did before, that made my day, week, month, & year! All in all, March 21st ties Christmas for the best day ever!

Huge thank you to Carson’s amazing teacher Ms. Brianna for organizing the assembly yesterday & all those who took time out to think of my sweet boy 💙💛💙💛






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